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Today we announced the launch of a series of surveys designed to determine which types of services for adults with autism are most needed in the New York metropolitan area. We are delighted to partner with UJA-Federation of New York and the Interactive Autism Network on this initiative. Read more below to see whether you are eligible to participate in the survey!

“The goal of this project is to identify the drivers of fulfillment and success for autistic adults in the areas of employment, leisure activities, and spirituality,” said Deborah Hilibrand, a member of UJA-Federation of New York’s Autism Task Force. “We will then use this information to help UJA-Federation and other agencies provide these critical activities by providing financial support for projects that deliver these services.”

“We also want to use the data to enhance public awareness about the critical issues facing adults with autism and their families by broadly disseminating the results of this survey,” said Alison Singer, president  the Autism Science Foundation.

The free survey is designed to be completed entirely online. Surveys must be completed by Friday, November 30, 2012. All responses and data collected will be kept anonymous and confidential. Participants in this survey do not have to be Jewish or receive services from UJA-Federation, and people of all faiths are welcome.

Eligibility to participate in the UJA-Federation Adult with ASD Survey includes:

  • Residency in the five boroughs of New York City, Long Island, or Westchester.
  • An adult with ASD who is independent and is not under anyone’s legal guardianship.
  • The parent of an independent adult with ASD (for example, one’s adult son or daughter with ASD is not under legal guardianship and maintains the right to make their own medical and legal decisions).
  • The legally authorized representative of a dependent adult with ASD (for example, you may have legal guardianship or medical power of attorney for the adult with ASD).

If you are a member of one of these three groups we invite you to participate by joining the Interactive Autism Network  – the world’s largest online autism research project — and then completing the “UJA-Federation Adult with ASD Survey.”

Additional funding for this project was provided by the Hilibrand Foundation and the FAR Fund.

To begin the survey, click on this link:  http://bit.ly/ORf7d5

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