Archive for the ‘Uncategorized’ Category

The Seaver Autism Center Advances in Autism Conference will be held on Sunday, April 3, 2011 at Mount Sinai School of Medicine. Chaired by Dr. Joseph Buxbaum, Director of the Seaver Autism Center, the conference is designed for healthcare professionals, educators, social workers and family members, and will feature Dr. Stephen Shore, EdD, who will give the Keynote Presentation, “Life on and Slightly to the Right of the Autism Spectrum: An Inside View Towards Matching Best Practice to Needs.” Dr. Shore will share his autobiographical story, and he will also demonstrate what it feels like to have autism.

To view the Conference Brochure, go to: http://bit.ly/SeaverAACBrochure

For more information, please contact Jessica Brownfeld at jessica.brownfeld@mssm.edu.

To register, please go to http://www.mssm.edu/cme/courses/autism or contact Jeanette Cotto at jeanette.cotto@mssm.edu.

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IMFAR Stakeholder Travel Awards will Support Parents, Individuals with Autism, Teachers & Students

(March 10, 2011—New York, NY)—

IMFAR 2011 will be held in San Diego

The Autism Science Foundation, a not for profit organization dedicated to supporting and funding autism research, today announced the recipients of its IMFAR Stakeholder Travel grants. ASF will make 11 awards of up to $1000 to be used to cover expenses related to attending the International Meeting for Autism Research in San Diego in May 2011. After the conference, grant recipients will be expected to share what they’ve learned with families in their local communities and/or online.

This year’s recipients are:

  • Geraldine Bliss—Parent
  • Matthew Carey—Parent
  • Shannon Des Roches Rosa—Parent
  • Mark Fornefeld—Self Identified Individual with Autism
  • Abby Hare—Graduate Student
  • Erin Lopes—Parent
  • Molly McGrath—Self Identified Individual with Autism/MIT Media Lab
  • Brianna Miller—Special Ed Teacher, Newark Public Schools
  • Sharman Ober-Reynolds—Parent/Senior Research Coordinator,SARRC
  • Megan O’Boyle—Parent
  • Max Rolison—Undergraduate Student

IMFAR is an annual scientific meeting, convened each spring, to promote exchange and dissemination of the latest scientific findings in autism research and to stimulate research progress in understanding the nature, causes, and treatments for autism spectrum disorders. IMFAR is the annual meeting of the International Society for Autism Research (INSAR).

“We are thrilled to be able to give back directly to the autism community in a research-focused way”, said Alison Singer, President of the Autism Science Foundation. “We are confident that the award recipients will all do a great job of bringing critical new research information to their communities, improving the speed with which the latest data are shared with the broader autism community.”

The Autism Science Foundation is a 501©(3) public charity launched in 2009 whose mission is to support autism research by providing funding to those who conduct, facilitate, publicize and disseminate autism research. ASF also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

The International Society for Autism Research (INSAR) is a scientific and professional organization devoted to advancing knowledge about autism spectrum disorders. INSAR was created in 2001. The society runs the annual scientific meeting – the International Meeting for Autism Research (IMFAR) and publishes the research journal “Autism Research”.

Contact Info:

Julie Martin
Events and Media Manager
Autism Science Foundation
419 Lafayette Street, 2nd floor
New York, NY 10003


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Thank you Nick!


Behind those eyes
Behind those eyes tells a story,
Stories of struggle, stories of joy,
Stories of mothers crying,
And husbands tightly holding them saying “it’s going to be ok.”Mothers on their knees asking God:
Why my boy?
Why my pride and joy?
Why must this happen to such a perfect soul?
How will this affect my family as a whole?
And they receive no answer, and they feel they are unloved; and given a curse.

But then that mother goes home to that child,
That child who has been branded…
That child, that doctors said will never succeed,
Who has a certain glow in his eyes, like northern stars.
And as she looks into his eyes she knows that there’s something more.
Something behind those blank as the night sky eyes,

But as she gazes in those eyes she can’t find what it is that draws her in.
And she hopes and prays that one day she will discover what that is.

As years go by, that mother’s love grows more, and more stories sprout in those eyes.

Stories of children laughing and pointing, shouting out
“Hey look at the retard over there!”
Though the child fully understands, they are unable to form the words to defend themselves,
So they make that weird sound that those kids find so damn funny.
And they make movements with their hands that people love to freakn imitate.

But there’s more.

Stories of constant therapies,
Stories of break throughs, when the boy finally can say in sign language,
I love you!

And as the mother rejoices in this crowing achievement,
That mother finally sees what she’s been looking for.

That behind those eyes there’s more than stories,
More than weird noises and body language.

There’s a voice, one that has been stricken,
Inside crying out,
I wanna speak like them!
I wanna have fun like them!
I wanna dream like them!

But most of all I wanna say!
I love you mommy!

And right there –that mother realizes that they have been answered.
That they have not been cursed.
They learn that they have been given the most pure love of all.
And as time goes on, they learn to appreciate every little milestone, no matter how small.

So don’t judge that child until you too look into their eyes
Behind those eyes, there hides a boy, wanting to be just like you.
Behind those eyes.

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Click here to view the Shot of Prevention article

So there are doctors.  And then there are celebrities.  But in today’s society, we have a new breed of medical influence being packaged by what only TV ratings can create – celebrity doctors. One of the most notable of these is Dr. Oz, whose popularity soared after he appeared in over 55 episodes of Oprah.  Now, let’s give credit where credit is due.  Dr. Oz, who ranked third in the 2010 Forbes magazine list of Most Influential Celebrities, is a brilliant opportunist.  Yes, he is very well educated.  Yes, he is a bona fide heart surgeon.  But he is also an skillful entertainer and today’s episode, entitled What Causes Autism? clearly  illustrated that.

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Send us your photos!

We need more photos of individuals with autism and their families for our upcoming annual report.  The annual report will appear in print and online.  Right now we have a few spots left to showcase our family members doing fun and wonderful things.

Before you submit your photos please make sure they meet the following guidelines:

  • Photos must be 1 MB or bigger in size
  • Close-ups of 1-2 people are best
  • Simple backgrounds
  • In sharp focus
  • The more light on your subjects the better
  • Pick current photos taken in the past 2 years
  • No studio portrait shots or school photos

To submit your photos email them by February 23 to Dawn at dawnacrawford@gmail.com. All participants will receive a release form for signature and return to ASF.

Thank you for your help. We can’t wait to see your pictures!


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Click here to view the interview

Gupta: There has been a lot of scrutiny of vaccines recently — specifically childhood vaccines. There has been a lot of news about is there a connection with autism, for example. What do you make of all that? Dr. [Andrew] Wakefield wrote a paper about this [in The Lancet in 1998] saying he thought there was a connection. And there were lower vaccination rates over a period of time as a result in Britain, then the United States. What are your thoughts?

Gates: Well, Dr. Wakefield has been shown to have used absolutely fraudulent data. He had a financial interest in some lawsuits, he created a fake paper, the journal allowed it to run. All the other studies were done, showed no connection whatsoever again and again and again. So it’s an absolute lie that has killed thousands of kids. Because the mothers who heard that lie, many of them didn’t have their kids take either pertussis or measles vaccine, and their children are dead today. And so the people who go and engage in those anti-vaccine efforts — you know, they, they kill children. It’s a very sad thing, because these vaccines are important.

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ASF President Alison Singer was a featured guest on NPR’s “The Diane Rehm Show” on Wednesday, February 2nd. The segment was titled “Vaccines and Autism: A story of Medicine, Science and Fear“. Other guests included Seth Mnookin, author of The Panic Virus, and Dr. Roberta DeBiasi.

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Dr. Offit was on to promote his new book, Deadly Choices: How the Anti-Vaccine Movement Threatens Us All.

Click here to watch the interview

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