Learn more about how ASF’s IMFAR Travel Grantees plan to take advantage of their IMFAR experience. First up, Kadi Luchsinger and Mark Shen:
Kadi Luchsinger is the Executive Director of the Dup15q Alliance, which services families all over the world who have a child with Dup15q Syndrome. Duplication 15q Syndrome is the most common cytogenetic cause of autism. Many children with Dup15q have autism, seizures, anxiety, ADHD and global developmental delays.
Dup15q Alliance has recently launched an international registry and plans to use IMFAR to let the research community know about this registry.
You can learn more about the Dup15q alliance on their website — dup15q.org
Mark Shen is a PhD student in Cognitive Neuroscience under the mentorship of David Amaral, where he researches the early brain development and potential brain markers in infants at risk for autism and toddlers who have been diagnosed. Mark is also an active participant in the autism community as a volunteer coach for the Special Olympics and as a founding member of the INSAR Community Advisory Committee.
Mark is also Chair of the INSAR Student Committee. The Student Committee represents 400 INSAR student members (graduate students and postdocs), which comprise nearly 40% of INSAR membership. At IMFAR, Mark plans to write a letter to the 400 INSAR student members and share his impressions of the conference, including: important research that was presented, the progress being made to involve stakeholders at the meeting, and to ultimately communicate to them what junior scientists can do to bridge our research with the autism community in their respective locations.